I have a son With SJS he became sick at the age of 6months and he is now 6 years old. We just found out that the Doctors think that he has this disease. We still have some testing to do. But I would love to talk to you I might be able to help you with everthing I have been through. Pleas contact me through email would not mind a bit my email address it Thatcher74@aol.com. HOpe that I can be of some help. God Bless you all. Michelle Jenkins