Schwartz-Jampel Forum
Due to unyeidling spam I've moved the forum to Google Groups at Schwartz-Jampel Forum. If you want to join just email me and I'll add you to the memberlist.
We also have a Facebook page.
The old forum is still visible to the public.
The Schwartz-Jampel Syndrome forum/message board is dedicated to the discussion of Schwartz-Jampel Syndrome. Please feel free to add your insights and experiences about SJS. As far as I know, the number of people with Schwartz-Jampel Syndrome is very small. I hope to give us all a way to connect to each other with this forum.
New Diagnosis
I would be grateful if anyone who is either a parent of a child with SJS or someone with SJS would be willing to speak with me regarding their experiences and any advice they may have.
Thanks