Schwartz-Jampel Site

last modified: 2005-05-24 06:35 PM

tags: front matter | schwartz-jampel syndrome

I am working on the Schwartz Jampel site and I would like your help.

What would you like to see on the site? What would be helpful for people with SJS and their families, doctors, etc.?

I see: Message board for general discussion of any topic Question/Answer area Resources area

would like to have

Posted by chell2005 at 2005-06-16 03:07 AM

Wish there was a site where parents can chat with eachother about this disease. I have a 6 year old with SJS and have been looking for this type of web site for a long time. It is hard with out support from people that understand what you are going through. Thank you Michelle