A mini gathering of people with Schwartz-Jampel Syndrome.

Me, Doug & Dad. Doug drove up from St. Petersburg Fl. with his wife Roberta to visit us. He had been looking for people with SJS for about eight years when he found this site. Two weeks later he was in Indianapolis.

It was a good visit. We drank a lot of coffee at Laze Daze and heard Audio Diner at the Irving Theater.