New Schwartz-Jampel Syndrome Contacts

In the last week I've made two new SJS contacts. One person is an adult female named Elizabeth and the other is the mother of a male child. I've created a Schwartz-Jampel Syndrome Google Map with their pictures and all SJS people I have met through email, in person, via a healthcare worker, or through a relative of a person with SJS.

View Schwartz-Jampel Syndrome Map in a larger map

You can read her story on the Google Groups SJS forum.